Tuesday, April 27, 2010

I'm Breaking Out While Trying Not to Freak Out

I am going to expand my number-loving, quantitatively focused brain and try my hand at qualitative research methods. I am also going to try to look at this proposed research through the lens of someone who understands the Capability Approach. Michael asked us to think of how we would apply all of the things we have read to a research project-this is my first [hopefully not too weak] attempt. Bear with me, I have a feeling it's going to be long and cumbersome. I am trying to combine focus groups and the capability approach. Wish me luck...
The Capability Approach emphasizes 1) functional capabilities/substantive freedoms, 2) human beings have the capacity to function in important ways if they wish, and 3) human beings can be deprived in many ways-ignorance, lack of financial resources, etc (I really like 2 & 3). In addition, Nussbaum adds to this approach giving ten capabilities that should be supported by all democracies.
  1. Life. Being able to live to the end of a human life of normal length; not dying prematurely, or before one's life is so reduced as to be not worth living.
  2. Bodily Health. Being able to have good health, including reproductive health; to be adequately nourished; to have adequate shelter.
  3. Bodily Integrity. Being able to move freely from place to place; to be secure against violent assault, including sexual assault and domestic violence; having opportunities for sexual satisfaction and for choice in matters of reproduction.
  4. Senses, Imagination, and Thought. Being able to use the senses, to imagine, think, and reason—and to do these things in a "truly human" way, a way informed and cultivated by an adequate education, including, but by no means limited to, literacy and basic mathematical and scientific training. Being able to use imagination and thought in connection with experiencing and producing works and events of one's own choice, religious, literary, musical, and so forth. Being able to use one's mind in ways protected by guarantees of freedom of expression with respect to both political and artistic speech, and freedom of religious exercise. Being able to have pleasurable experiences and to avoid non-beneficial pain.
  5. Emotions. Being able to have attachments to things and people outside ourselves; to love those who love and care for us, to grieve at their absence; in general, to love, to grieve, to experience longing, gratitude, and justified anger. Not having one's emotional development blighted by fear and anxiety. (Supporting this capability means supporting forms of human association that can be shown to be crucial in their development.)
  6. Practical Reason. Being able to form a conception of the good and to engage in critical reflection about the planning of one's life. (This entails protection for the liberty of conscience and religious observance.)
  7. Affiliation.
    1. Being able to live with and toward others, to recognize and show concern for other humans, to engage in various forms of social interaction; to be able to imagine the situation of another. (Protecting this capability means protecting institutions that constitute and nourish such forms of affiliation, and also protecting the freedom of assembly and political speech.)
    2. Having the social bases of self-respect and non-humiliation; being able to be treated as a dignified being whose worth is equal to that of others. This entails provisions of non-discrimination on the basis of race, sex, sexual orientation, ethnicity, caste, religion, national origin and species.
  8. Other Species. Being able to live with concern for and in relation to animals, plants, and the world of nature.
  9. Play. Being able to laugh, to play, to enjoy recreational activities.
  10. Control over one's Environment.
    1. Political. Being able to participate effectively in political choices that govern one's life; having the right of political participation, protections of free speech and association.
    2. Material. Being able to hold property (both land and movable goods), and having property rights on an equal basis with others; having the right to seek employment on an equal basis with others; having the freedom from unwarranted search and seizure. In work, being able to work as a human, exercising practical reason and entering into meaningful relationships of mutual recognition with other workers.

    Thanks, Wikipedia.

    What's this have to do with anything? I want to work with sick kids and their families. Help make their lives a little easier, keep their system from getting too far out of whack, enable them to maintain the 10 capabilities that are a given to all people in a democracy. Unfortunately, there's not a lot of research in this area of therapy, so I'm thinking of doing a focus group with the families of sick kids to find out what they feel they need to protect their capabilities. Focus groups generate information important to the advancement of programs, communities, and organizations. When you look at focus groups, they seem to match up pretty well with what we have talked about in class regarding the CA. For example:
    Focus groups (as compared to quantitive and popular survey methods] involve:
    1) Insight not Rules-it is the production of insight; you get not only the content but also emotions, ironies, contradictions and tensions. In other words, we get the meaning behind the facts.
    2) Social not Individual-we combine multiple individual perspectives to see how they fit together
    3) Flexibile not Standardized-using an interview guide [by a competent moderator] helps the group relax, open up, think deeply, and consider alternatives
    4) Words not Numbers-a frightening concept for a girl like me; themes/patterns/perspectives are utilized for analysis
I also love this from the Sen book:
"Unintended consequences dominate actual history-if the most important things that happen are not intended [and not brought about through purposive action], then reasoned attempts at what we are pursuing what we want may appear to be rather pointless."
While this immediately makes me think of love and the natural course it takes [though so many try to force it], I think it also applies to the benefit of focus groups. When the investigator takes a back seat and lets the participants guide the discussion, valuable pieces of information will inevitably come up to further guide the investigation.

So that was me thinking out loud on a blog for a few hours. Natasha has my brain headed in the dissertation direction. Feel free to comment.


4 comments:

  1. forgive the length, i wasn't going to list all 10 that they mention [or their definitions] but I worried people wouldn't utilize the hyperlink.

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  2. Daria,

    This is an interesting idea. I think using focus groups for CA has very much to do with how you approach and use focus groups - as a matter of fact I'm not even sure you should call them focus groups, but let's talk about that in a bit.

    I terms of the larger issue you are exploring I think that it is fascinating in the context of CA. What would be even more interesting is if you did research in two different areas - I think you could choose any, rural/urban, socio-economic, racial diffferentiation - and to see if there are diffference in capabilities. Let's think about what capabilities would be important for a family with a sick member? From a very general perspective there is information - which I believe might be the most important capability, and access to information. I know more and more people who are sick who don't rely on their doctors anymore but go on the internet to understand their illness, with support and discussion groups on the internet. Is there a diffference in this, and how much would it be related to broad band access, or even the realization that you can go beyond your doctor. Another thing to really explore is something you wouldn't think about but willingness to show yourself in public when you are sick or when your child is sick. I think this relates very much to the deficit model that I discussed below (and maybe is related to the fact that we tend to separate sick individuals and their families from the mainstream population). The idea that if you are sick there is something wrong with YOU. We feel bad about it but often times we won't even discuss it. And taking Nussbaum into account what about bodily integrity for those who are sick, do they really have control of their own body or it is taken away from them? There are many, many implications here.

    Now to get back to focus groups. I studied with somebody who helped pioneer focus groups. The general motivation is very deductive. The person running the focus group is trying to find out what the individuals think and use that as an information source to make decisions about how to get happen what you want to happen. This is the reason it is used in politics and for selling things. I think interactions in CA might take on a different quality.

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  3. Daria,

    In summary I liked your idea and had a similar comment, wrote it all out which took all freaking day and hit post and it threw me an error and deleted the dang post! So I am through with this blog today. I'm mad! I'll comment tomorrow but I did find the first half very insightful!

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  4. I wrote up above that I am not really that enamored with focus groups as they currently exist for CA. As a matter of fact I have become more disenchanted with focus groups in general as I think they are starting to be used in far too cynical a fashion in much research. One of two things often happens which is either the facilitator leads the group in a particular direction, often finding what they set out to find, or as Daria says the facilitators steps back but then often the group can devolve.

    I have been looking for an alternative and went to a session that might offer one, and might really work for what Daria is trying ot accomplish especially. It is called Digital storytelling, and it starts with getting individuals within a group to tell their stories and then showing the stories to the focus group and using them as a jumping off point for developing two or three really good questions.

    Anyway, it was a very interesting presentation. But what I like about Digital Storytelling is it is not about putting people in a group and saying "Okay, tell us what is wrong with you lives or why your lives don't work." It is more about "Why are lives the way that they are?" which is a critical question I think if you are taking CA as your starting point.

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